A Shot in the Dark

By Cornelia Read
There's a topic I've wanted to blog about here for a long time, but it's pretty heavy stuff--not exactly the bright and breezy fare most people want to skim through online while sipping their morning beverage of choice.
Over the last year or so, every time I said to myself, "hey, maybe this week, if I can just get my head around a way to make the info meaningful and compelling... to personalize it somehow so that it's not a complete drag to ingest, but yet not so bereft of necessary info that it's easy to blow off..." I'd end up scuppering the whole thing as impossible to convey.
I'm still not sure I can make a blog post out of this that won't put you to sleep, but something happened this month that makes me feel like it's really, really important that I give it my very best effort right now, okay?

I'm going to do my damnedest not to make this boring, or strident, or "you can save this child or you can turn the page"-esque.
In fact, I'm not going to start off with the topic itself. I want to just loosely float two ideas first--kind of a warmup. Anedoctal stuff.
The first thing is a story I read some years ago. I don't remember exactly when or where (the New Yorker? The Sunday New York Times?) It was just a snippet from an article about something else, but it's really stuck with me for a lot of reasons.The gist of it is that there was this guy--a journalist--who happened to be friends with an astonishingly successful investor. This investor had made serious BOATLOADS of money in the stock market, and one day his buddy, the journalist dude, got curious about the way his own line of work might be tied into his friend's success, so asked him which news outlets he'd relied on for accurate information on which to base his buying and selling decisions. Newspapers? Magazines? Television news reports?
Here's what the investor said (I'm paraphrasing more, from here on out), "None."
How can that be? asked his friend, to which the gazillionaire dude replied, "I realized a long time ago that there are two subjects in the world about which I know a great deal. One is sailing, and the other is cabbage varieties. And about twenty years ago, it occured to me that every time either sailing or cabbages were discussed in the mainstream press, the writers got nearly everything wrong.
Well, after a while, I started to wonder why I believed them about things I didn't know about. I mean, what was the likelihood that they were conveying accurate, well-researched information on everything but boats and cabbage? So that's when I stopped relying on journalists' information as a basis for my business decisions. And I've made a great deal of money ever since."
So, my Nakeds, do me a favor and think about a subject you really know by heart--I don't care what it is: your hometown, your favorite breed of pet, or classic muscle-car engines or ham radio...

...or a medical condition that you or someone near and dear to you has battled for a long time--something you have a bone-deep, working knowledge of.

Got it?
Now ask yourself... when there's an article on that topic in Time or Newsweek, or even the New York Times or the Wall Street Journal, do they get it right?
Or do you, like me, tend to read those pieces expecting to be disappointed, and sometimes skip them altogether because even the headline is idiotic, because it's just such a goddamn drag to read the fulminations of some J-school grad who skimmed the clips file and/or gave the topic a desultory Google before banging together a cursory overview of same by deadline?
Yeah, I thought so. Please file that feeling away for a bit.Which leads us to...
Which can basically be summed up: the older I get, the less faith I have in "Miracle Medical Breakthroughs!"
I mean, let's just look at the info propounded by "the experts" on the subject of diet and nutrition since I was in my teens: low-fat one decade, low-carbs the next...eggs will kill you, eggs will save you...Italians don't have heart attacks because they eat olive oil, French people don't have heart attacks because they drink red wine...

blueberries are God, dark chocolate may save your life, monkeys live twice as long if you cut their calorie consumption in half, people in the Caucausus live to be 150 because they eat yogurt, salmon will make you smarter, pregant women shouldn't eat tuna sandwiches because they have too much mercury in them...

And does anyone else remember those ubiquitous Seventies ads in the back of Cosmo and Seventeen about the kelp/B-6/cider vinegar/fourth-ingredient-I-can't-remember miracle weightloss program? That one sounded about as good as eating

I remember one stepfather in the mid-seventies who dumped wheat bran on whatever he ate, because it was supposed to cure everything.

Then after that he wouldn't eat salt. Then it was red meat. The year following was his swiss-chard period, I think. I was thank GOD away at school when he discovered high colonics, because he was also fond of lecturing all of us at the dinner table on the importance of whichever new thing he'd become a devotee of.
He was incredibly boring--not to mention cranky--most of the time.
And guess what? He died anyway, having arrived at the exact median age of life expectancy for an American male that year.

So, you know--all those medical breakthroughs! pronouncements! miracles!...? I tend to reserve judgment.
I'm not against western medicine--I love my penicillin and Excedrin and Motrin and Celexa and suture scars as much as the next person, and it's seriously wonderful that we've got smallpox on the run and don't have a whole lot of use for iron lungs anymore.
But... I also keep in mind the fact that western medical practitioners spent several centuries touting the benefits of leeches and "a good bleeding," while pooh-poohing the radical idea that one might want to wash one's hands (or one's saw) before performing, say, an amputation.
Let's take a look at another health issue that's seen a great deal of "expert" see-sawing over the course of, say, the last seventy years. Anyone remember these ads? I'm a little young to have run across them first hand:

How 'bout we zero in on smoking for a minute, okay? I'm going to cite some stats and a bit of a timeline, briefly (click here if you want backup)

The first study linking cigarettes to lung cancer was published in 1939.
The first statement from the Surgeon General on the topic was published in the Journal of the American Medical Association in November, 1959.

On June 7, 1962, another Surgeon General announced that he was establishing an "expert committee to undertake a comprehensive review of all data on smoking and health."

On January 11, 1964, after some 15 months of intensive study, this committee--half the members of which were smokers-- issued its unanimous report stating that "cigarette smoking is a health hazard of sufficient importance in the United States to warrant, appropriate remedial action."
The government recommended that a warning label be printed on all packs of cigarettes sold in this country as of January 1, 1965, and in all cigarette advertising six months later.

The tobacco industry then prevailed upon Congress to change the proposed wording from "Caution: Cigarette 'Smoking is Dangerous to Health. It May Cause Death from Cancer and Other Diseases" to "Cigarette Smoking May be Hazardous to Your Health," with the passage of the Cigarette Labeling and Advertising Act of 1965.

This act also prohibited the Federal Trade Commission and state and local governments from requiring any other label on cigarette packages and any warnings at all in cigarette advertising before 1969.
Okay, got that? A reputable, peer-reviewed study links cigarettes to lung cancer in 1939, no official statement was issued by federal health officials until 1959 AND the words "may be hazardous to your health" couldn't be included in cigarette ads--newspaper, magazine, radio, and television--until 1969.
A New York Times editorial called Congress's cigarette labeling and advertising act "a shocking piece of special-interest legislation--a bill to protect the economic health of the tobacco industry by freeing it of proper regulation."

An article in the Atlantic Monthly described the political maneuvering behind the legislation under the title "The Quiet Victory of the Cigarette Lobby: How It Found the Best Filter Yet--Congress."
Now let's take a look at current tobacco-based revenues, campaign contributions, and lobbying expenditures of America's three biggest tobacco companies (citation):
Altria Group (Philip Morris)
2006 Tobacco Revenues: $66.7 billion
2008 Election cycle political contributions
by Altria Group PAC: $986,500
2007 Lobbying expenditures: $7.2 million
Reynolds American (RJ Reynolds)
2006 Revenues: $8.5 billion
2008 Election cycle political contributions
by RJ Reynolds PAC: $770,500
2007 Lobbying expenditures: $1.95 million
Loews Corp (Lorillard)
2006 Tobacco Revenues: $3.9 billion
2008 Election cycle political contributions
by Lorillard PAC: $175,250
2007 Total Lobbying expenditures: $1.96 million
Overall Tobacco Industry Political Contributions since 1997: more than $34.7 million
Here endeth the second intro topic-- a recap: medical experts often reverse themselves over time, and it took the U.S. Government nigh on thirty years after the first study linking cigarette smoking to lung cancer to officially warn citizens about the dangers of smoking.
Enter topic the third...

If you think the tobacco companies spend a lot of money on lobbying and campaign donations, let's do a little comparison on how they rate compared to the pharmaceutical industry, in this country...
Tobacco (between 1997 and 2007): $34.7 million
Pharmaceuticals (for same period): $675 million
Oh, wait, those figures aren't exactly comparable... that second amount is for lobbying alone--it doesn't include the drug companies' political campaign contributions, in the United States.

Here's another figure that might give a small idea of the pharmaceutical industry's global clout --the amount spent on marketing (and "administrative costs") by the 11 biggest drug companies in 2004:
$100 billion
And here's what they reported spending on research and development that year: $50 billion.

When Dr. Marcia Angell stepped down from her post as the edtior-in-chief of the New England Journal of Medicine last year, she published therein a scathing parting-shot takedown of the pharmaceutical industry's impact on contemporary medical practice.

My favorite paragraph is the following, in which she says of the pharmaceutical companies' marketing budgets:
The industry depicts these huge expenditures as serving an educational function. It contends that doctors and the public learn about new and useful drugs in this way. Unfortunately, many doctors do indeed rely on drug-company representatives and promotional materials to learn about new drugs, and much of the public learns from direct-to-consumer advertising. But to rely on the drug companies for unbiased evaluations of their products makes about as much sense as relying on beer companies to teach us about alcoholism.It's not just doctors and consumers who may be lead astray by these expenditures, however, but the very state and federal regulatory agencies we rely upon to safeguard the public health.

Quoting from government transcripts obtained via the Freedom of Information Act, Robert F. Kennedy Jr. wrote in a 2005 article published in Rolling Stone that:
In June 2000, a group of top government scientists and health officials gathered for a meeting at the isolated Simpsonwood conference center in Norcross, Georgia. Convened by the Centers for Disease Control and Prevention, the meeting was held at this Methodist retreat center, nestled in wooded farmland next to the Chattahoochee River, to ensure complete secrecy.Verstraeten wasn't alone in expressing concern. The transcripts record Dr. Bill Weil, a consultant for the American Academy of Pediatrics, as saying, "You can play with this all you want,... [The results] are statistically significant."
The agency had issued no public announcement of the session -- only private invitations to fifty-two attendees. There were high-level officials from the CDC and the Food and Drug Administration, the top vaccine specialist from the World Health Organization in Geneva and representatives of every major vaccine manufacturer, including GlaxoSmithKline, Merck, Wyeth and Aventis Pasteur.
All of the scientific data under discussion, CDC officials repeatedly reminded the participants, was strictly "embargoed." There would be no making photocopies of documents, no taking papers with them when they left.
The federal officials and industry representatives had assembled to discuss a disturbing new study that raised alarming questions about the safety of a host of common childhood vaccines administered to infants and young children. According to a CDC epidemiologist named Tom Verstraeten, who had analyzed the agency's massive database containing the medical records of 100,000 children, a mercury-based preservative in the vaccines -- thimerosal -- appeared to be responsible for a dramatic increase in autism and a host of other neurological disorders among children.
"I was actually stunned by what I saw," Verstraeten told those assembled at Simpsonwood, citing the staggering number of earlier studies that indicate a link between thimerosal and speech delays, attention-deficit disorder, hyperactivity and autism. Since 1991, when the CDC and the FDA had recommended that three additional vaccines laced with the preservative be given to extremely young infants -- in one case, within hours of birth -- the estimated number of cases of autism had increased fifteenfold, from one in every 2,500 children to one in 166 children.

Dr. Richard Johnston, an immunologist and pediatrician from the University of Colorado whose grandson had been born early on the morning of the meeting's first day, said "My gut feeling? Forgive this personal comment -- I do not want my grandson to get a thimerosal-containing vaccine until we know better what is going on."

But the conversation didn't then turn to ways to ensure public safety. Dr. Robert Brent, a pediatrician at Delaware's Alfred I. duPont Hospital for Children was more worried about the possibility that, "We are in a bad position from the standpoint of defending any lawsuits. This will be a resource to our very busy plaintiff attorneys in this country."

Dr. Bob Chen, head of vaccine safety for the CDC, chimed in with the assertion that, "given the sensitivity of the information, we have been able to keep it out of the hands of, let's say, less responsible hands."

Dr. John Clements, vaccines advisor at the World Health Organization, declared that "perhaps this study should not have been done at all," adding, "the research results have to be handled," that the results of the study, "will be taken by others and will be used in other ways beyond the control of this group."

Adds Kennedy, at this point:
In fact, the government has proved to be far more adept at handling the damage than at protecting children's health. The CDC paid the Institute of Medicine to conduct a new study to whitewash the risks of thimerosal, ordering researchers to "rule out" the chemical's link to autism. It withheld Verstraeten's findings, even though they had been slated for immediate publication, and told other scientists that his original data had been "lost" and could not be replicated. And to thwart the Freedom of Information Act, it handed its giant database of vaccine records over to a private company, declaring it off-limits to researchers. By the time Verstraeten finally published his study in 2003, he had gone to work for GlaxoSmithKline and reworked his data to bury the link between thimerosal and autism.
Vaccine manufacturers had already begun to phase thimerosal out of injections given to American infants -- but they continued to sell off their mercury-based supplies of vaccines until last year [2004]. The CDC and FDA gave them a hand, buying up the tainted vaccines for export to developing countries and allowing drug companies to continue using the preservative in some American vaccines -- including several pediatric flu shots as well as tetanus boosters routinely given to eleven-year-olds.
Former Senate Majority Leader Bill Frist, who received $873,000 in contributions from pharmaceutical companies, slipped a "rider" into a Homeland Security bill in 2002, protecting vaccine manufacturers from lawsuits brought by those who suffer vaccine injury--this despite the fact that any vaccine-injury cases ALREADY have to be brought to trial in a special federal Vaccine Court.

Eli Lilly, the company that manufactures Thimerosal, contributed $10,000 to Frist's campaign fund the next day, then bought 5,000 copies of his book on bioterrorism.

Kennedy adds:
The measure was repealed by Congress in 2003 -- but earlier this year, Frist slipped another provision into an anti-terrorism bill that would deny compensation to children suffering from vaccine-related brain disorders. "The lawsuits are of such magnitude that they could put vaccine producers out of business and limit our capacity to deal with a biological attack by terrorists," says Dean Rosen, health policy adviser to Frist.
But wait, there's more... On five separate occasions, Frist has tried to seal all of the government's vaccine-related documents -- including the Simpsonwood meeting transcripts.
But what do we read about all of this in the mainstream press? Let's see, there was the study claiming that "autism is caused by drinking during pregnancy" this week, that got global play. Last year it was "autism is caused by watching television."

And there are countless articles in the New York Times and Wall Street Journal assuring readers that "all reputable studies prove there's no link between vaccines and autism," that "autism rates have not gone down since ALL thimerosal was removed from ALL vaccines in 2001" and a great many characterizing concerned parents of autistic children as desperate for someone or something to blame for their children's condition or as lawsuit-hungry money grubbers.

Have autism rates gone down since thimerosal was phased out of vaccines, starting in 2001? Nobody knows. Can you believe that? Seriously, there's been no effort on the part of the CDC or any other federal agency to gather national data on that front.

California is the only state that keeps records of those receiving developmental disabilities services which are categorized by specific disability. It was California's numbers, in fact, which first confirmed what parents had long suspected---and "experts" long denied--that the rate of autism among young children in this country started skyrocketing in the 1990s.
If California's rates went down, that might be an indicator that removal of thimerosal was making some kind of a difference, right?
Let's just ignore the Associated Press article published in 2005 that announced "The number of new cases of autism in California has fallen for the first time in more than 10 years in what may be a bellwether for autism rates nationwide, according to new data compiled by the state Department of Developmental Services."
Everyone else ignored it, after all. And any parent who tries to bring it up is branded a crazed Luddite, or worse.

Michelle Malkin, with whom I don't always see eye-to-eye politically except on this topic, blogged "In defense of parents with informed vaccine skepticism" on March 24th:
The New York Times published a piece today about parents choosing not to expose their children to certain vaccines. This prompted blogger condemnations of those parents as “Bobo sociopaths” and a recommendation from Glenn Reynolds that “we should make clear that parents who, with no genuine medical reason, forego vaccinating their kids are bad parents, and bad citizens.”
Look, I could run you through the flaws in the studies routinely cited in that type of article (the Danish one, the Israeli one, etc.), or the differences in the way ethyl and methyl mercury break down in the body (not many), or the still-toxic and untested preservatives that have replaced thimerosal in multi-dose vials of vaccines, or the study performed at Columbia on the aberrant behaviors of infant mice injected with thimerosal, or the similarities in symptoms between autism and mercury poisoning,

or the fact that among thousands of Amish people in Pennsylvania (virtually non-vaccinated, as a population) only a handful of kids were found with any form of autism--one who'd been adopted in China and three who'd received vaccinations--when the expected number per that population would be around 130 affected individuals, or the hypothesis that autistic kids may lack the proper metabolic apparatus to excrete heavy metals as quickly as "typically developing" kids, or statistics on how much mercury is still in a number of shots administered routinely to infants and children and pregnant women (flu, tetanus, Rhogam, etc.)--because that's my version of the genius investor's "cabbages and sailing," these days....
(please run your mouse over the text of the previous two paragraphs to click through to studies cited--for some reason the hyperlinks aren't highlighted)
But I don't want to bore you any more than necessary, and besides, as a "bad parent and bad citizen," I'll let Kennedy speak to the history of the issue instead:
During the Second World War, when the Department of Defense used the preservative in vaccines on soldiers, it required Lilly to label it "poison."And now I'd like to quote some numbers recently put forth by a toxicologist named Michael F. Wagnitz, in a rebuttal letter to the editors of Pediatrics, the journal of the American Academy of Pediatrics.
In 1967, a study in Applied Microbiology found that thimerosal killed mice when added to injected vaccines. Four years later, Lilly's own studies discerned that thimerosal was "toxic to tissue cells" in concentrations as low as one part per million -- 100 times weaker than the concentration in a typical vaccine. Even so, the company continued to promote thimerosal as "nontoxic" and also incorporated it into topical disinfectants. In 1977, ten babies at a Toronto hospital died when an antiseptic preserved with thimerosal was dabbed onto their umbilical cords.
In 1982, the FDA proposed a ban on over-the-counter products that contained thimerosal, and in 1991 the agency considered banning it from animal vaccines. But tragically, that same year, the CDC recommended that infants be injected with a series of mercury-laced vaccines. Newborns would be vaccinated for hepatitis B within twenty-four hours of birth, and two-month-old infants would be immunized for haemophilus influenzae B and diphtheria-tetanus-pertussis.
The drug industry knew the additional vaccines posed a danger. The same year that the CDC approved the new vaccines, Dr. Maurice Hilleman, one of the fathers of Merck's vaccine programs, warned the company that six-month-olds who were administered the shots would suffer dangerous exposure to mercury. He recommended that thimerosal be discontinued, "especially when used on infants and children," noting that the industry knew of nontoxic alternatives. "The best way to go," he added, "is to switch to dispensing the actual vaccines without adding preservatives."...
Rep. Dan Burton, a Republican from Indiana, oversaw a three-year investigation of thimerosal after his grandson was diagnosed with autism. "Thimerosal used as a preservative in vaccines is directly related to the autism epidemic," his House Government Reform Committee concluded in its final report. "This epidemic in all probability may have been prevented or curtailed had the FDA not been asleep at the switch regarding a lack of safety data regarding injected thimerosal, a known neurotoxin." The FDA and other public-health agencies failed to act, the committee added, out of "institutional malfeasance for self protection" and "misplaced protectionism of the pharmaceutical industry."
Wagnitz introduced his list by writing, "Parents get angry when they see the following numbers listed on the internet. These numbers have been out there for everyone to read for years."
Here are the numbers he cited:
0.5 parts per billion (ppb) mercury = Kills human neuroblastoma cells (Parran et al., Toxicol Sci 2005; 86: 132-140).
2 ppb mercury = U.S. EPA limit for drinking water http://www.epa.gov/safewater/contaminants/index.html#mcls
20 ppb mercury = Neurite membrane structure destroyed (Leong et al., Neuroreport 2001; 12: 733-37).
200 ppb mercury = level in liquid the EPA classifies as hazardous waste. http://www.epa.gov/epaoswer/hazwaste/mercury/regs.htm#hazwaste
25,000 ppb mercury = Concentration of mercury in the Hepatitis B vaccine, administered at birth in the U.S., from 1990-2001.
50,000 ppb mercury = Concentration of mercury in multi-dose DTaP and Haemophilus B vaccine vials, administered 4 times each in the 1990's to children at 2, 4, 6, 12 and 18 months of age. Current "preservative" level mercury in multi-dose flu (94% of supply), meningococcal and tetanus (7 and older) vaccines. This can be confirmed by simply analyzing the multi- dose vials.
Oh yeah, I forgot to mention that Wagnitz has a conflict of interest: he's the father of an autistic child.
Way back near the beginning of this post, remember how I said that something happened this month which made me feel it was necessary to at long last write a blog post on, as it turns out, thimerosal?

Here's the event I spoke of: the government decided in favor of the plaintiffs in one of the first Vaccine Injury Court autism test cases to go to trial.
That's right, folks, a judge representing the United States government decided that the family of an autistic girl was entitled to a monetary award, because it indeed seens evident that her condition was caused by "routine childhood vaccinations."

The anti-vaccine-hypothesis gang got started on spinning the verdict immediately--most by claiming that the girl, Hannah Poling, wasn't "typical" of autistic children, in that she had a metabolic disorder exacerbated by vaccines, and that therefore the metabolic disorder is itself responsible for her "autistic symptoms."

There are still nearly 5,000 such cases pending in the special court. I would be cynical if I thought that might have something to do with the intensity of the spin.

And yet... the online version of Time magazine had the courage to look at the facts of the case without the disimissive attitude so many of us have come to expect from the "mainstream" media, in an article titled “Case Study: Autism and Vaccines.”
The piece opened as follows:
What happened to little, red-haired Hannah Poling is hardly unique in the world of autism. She had an uneventful birth; she seemed to be developing normally-smiling, babbling, engaging in imaginative play, speaking about 20 words by 19 months. And then, right after receiving a bunch of vaccines, she fell ill and it all stopped.Hannah Poling's father, by the way, is a neurologist.
Hannah, now 9, recovered from her acute illness but she lost her words, her eye contact and, in a manner of months, began exhibiting the repetitive behaviors and social withdrawal that typify autism. “Something happened after the vaccines," says her mom, Terry Poling, who is a registered nurse and an attorney. “She just deteriorated and never came back."
Here's one official's response to the court's ruling in the Poling case:
"Our message to parents is that immunization is life-saving," Dr. Julie L. Gerberding, the CDC's director, said at a hastily convened conference call with reporters.

"There's nothing changed. . . . This is proven to save lives and is an essential component of protection for children across America and around the world."Gerberding further commented:
“Let me be very clear that (the) government has made absolutely no statement indicating that vaccines are a cause of autism. That is a complete mischaracterisation of the findings of the case, and a complete mischaracterisation of any of the science that we have at our disposal today.”The Time article, however, went on to say:
...there’s no denying that the court’s decision to award damages to the Poling family puts a chink--a question mark--in what had been an unqualified defense of vaccine safety with regard to autism. If Hannah Poling had an underlying condition that made her vulnerable to being harmed by vaccines, it stands to reason that other children might also have such vulnerabilities.As blogger Kent Heckenlively wrote in response to the article "I found myself nodding along as I read, saying, 'Yes! Yes! They’re getting it!'”
"One of the final paragraphs [in the article] is a statement which shouldn’t be controversial," he continues, "but when our community has said similar things we’ve been treated like we were primitives who wanted to take public health back to the nineteenth century." (And/or "bad parents," "bad citizens," "Bobo Sociopaths.")
Here's the paragraph he's referring to:
It’s difficult to draw any clear lessons from the case of Hannah Poling, other than the dire need for more research. One plausible conclusion is that pediatricians should avoid giving small children a large number of vaccines at once, even if they are thimerosal-free. Young children have an immature immune system that’s ill-equipped to handle an overload, says Dr. Judy Van de Water, an immunologist who works with Pessah at U. C. Davis. “Some vaccines, such as those aimed at viral infections, are designed to ramp up the immune system at warp speed,” she says. “They are designed to mimic the infection. So you can imagine getting nine at one time, how sick you could be.” In addition, she says, there’s some evidence, "that children who develop autism may have immune systems that are particularly slow to mature.”
"It’s stunning to read a paragraph like the one above in a major publication like TIME magazine," says Heckenlively, "when it’s been part of the catechism of our movement for years. It’s as if we’ve been secret believers in God in some totalitarian state and the ruler just announced he’s considering a conversion."

He also cites a report titled, "Vaccine Case - An Exception or a Precedent," from the CBS Evening News broadcast that aired on March 6, 2008, in response to the CDC having stated that Hannah Poling's case is "a singular event":
While the Poling case is the first of its kind to become public, a CBS News investigation uncovered at least nine other cases as far back as 1990, where records show the court ordered the government to compensate families whose children developed autism or autistic-like symptoms... including toddlers who had been called "very smart" and "impressed" doctors with their "intelligence and curiousity" . . . until their vaccinations.
But even if all those remaining cases pending in the Vaccine Court are ruled in favor of the plaintiff families, it doesn't mean that the families of the other estimated 500,000 kids with autism in this country will be able to sue for damages, under existing legislation. The federal government has set a three-year statute of limitations, dating from the first incidence of autistic symptoms in a child.
The pharmaceutical industry is extraordinarily privileged. It benefits enormously from publicly funded research, government-granted patents, and large tax breaks, and it reaps lavish profits. For these reasons, and because it makes products of vital importance to the public health, it should be accountable not only to its shareholders, but also to society at large.
May that sentiment go from Angell's lips to God's ears. And possibly Julie Gerberding's.

And look, maybe it's not the vaccines or the thimerosal that made the rate of autism go from one kid in 15,000 to one kid in 116. It could be some new additive in peanut butter, or exposure to wheat bran and Sea Monkeys.
I mean, until the mid-Seventies the "experts" claimed it was caused by overly intellectual, emotionally distant "refrigerator mothers."
We know, at least, that that last hypothesis is a load of crap. But we don't know anything else.
Isn't it time we expended a little more effort trying to really figure this thing out, and a little less of same calling the parents who are doing their best to make sense of and cope with the horrors of this disorder idiots?
I can't speak for anyone else, but I'm pretty fucking sick of being told how stupid I am.
I won't hold my breath waiting for that to change any time soon.
Meanwhile: smoke 'em if you got 'em.

Oh, yeah... conflict of interest: I'm the mother of a child who has autism

Labels: autism, CDC, Hannah Poling, Julie Gerberding, mercury, thimerosal, vaccines












166 Comments:
And a beautiful one, at that.
*Disturbing* piece, GF. I'm astounded at the evidence you've collected & when it's not 8am I am going to go back and read it again...
YIKES.
Definitely something to ponder carefully, Cornelia. I confess, I've been one of those people who roll their eyes when I hear talk about vaccines being dangerous...but lately it occurs to me that injecting mercury into small children may just be a Really Bad Idea.
And dear God, am I ever sick of every piece of legislation or regulation proposed for the protection of the public being criticized, not on its own merits, but because it might "be good for the trial lawyers." Uh, yeah, if there's a law against hurting people, trial lawyers may sue you for the damage caused if you break it and hurt people. This is not an argument for making hurting people legal.
Cornelia for President!!!!
Cornelia, I do hope that this post is picked up and spread far and wide. The pharmaceutical industry scares the heck out of me, to tell you the truth, and your post here has served to remind me - again - of its power. My mother had a minor stroke a couple of years ago - at 78 she had never taken any meds in her life, ditto my father, who is on his way to 82. She was put on a fine cocktail of drugs that have made her feel desperately ill - one of them giving her the most dreadful muscular pain that brought her to tears. At first I was upset when she started cutting back on them (I don't want to lost my mum!) - especially the statins, which she's now dropped altogether. But she explained, "Jackie, I am now 80 years old, I've had a good innings, and I don't want to go to my grave in pain and feeling sick as a dog every day." Oh, yes, I forgot to add - she found out that she was being monitored for a "study" and a nurse suggested that her dosages - which were high - were experimental.
Let's all stick with this if we can - spread this post as far and wide as possible. I don't know what it will do, but this is the sort of bringing-it-all-together reporting that sometimes (sometimes ...) has an effect, and may even inspire the mainstream press to get its thick head into something relevant, important - crucial, in fact. Or have the pharmaceutical companies got them by the short and curlies too?
Thank you!
Most excellent post, Miss C, and well worth reading.
And a lovely photo of your beautiful daughter, by the way....
;-)
Not to be too over the top, but to paraphrase Plato:"to know is to know that you don't know.".....I always get a chuckle out of the fact that we say doctors are PRACTICING medicine [oh and the same indictment hold true for attorneys].
That add looks like it was from the 50s,but NeoCaine made a comeback,right? ....I think it was the early 80's....I think I remember seeing that ad in the Studio 54 mensroom.
Cornelia, I love that "blow it in her face" ad.....though I think if it was re-released it would be " blow it in her face and she'll punch you in yours."
Last take.....The tobacco, pharmaceutical and medical professions [and attorneys] are the only people I know who can blow smoke up their own ass.
As always, C, a truly enlightening and thought provoking post.....THANKS
Jon
I almost forgot....did you catch Demi Moore on Letterman this past Monday? Seems like blood sucking leeches are making a comeback [ oh I mean those tiny worm like animals, not the Drs who "treated" her].
Thoughtful and persuasive, Cornelia.
What a powerful and frightening mountain of information here, Ms. C.
Hey Cornelia - I think you need a job at the New York Times yourself. Such an amazing piece - not just factually, but wonderfully laced with the photos that you always use so well in your posts.
There isn't enough research being done - that's for sure. What I didn't know (and some people call me a conspiracy theory buff) was all the secret conference info. In the face of all of that, I'm amazed you can be 'objective' enough to call for more research. I think I'd take after Madeline and get me a shotgun. I applaud you. And I thank you for opening my eyes - thought I knew some stuff, but lady, you know a hell of a lot. Shout it from the rooftops! Maybe we'll all start listening soon.
Brilliant essay, Miss C. I say essay because 'post' would trivialize the cutting expose this is. I try not to take many big meds at all, inspite of monthly migraines, muscle problems, etc. My doctor was stunned several years ago when I turned down the latest trend in heavy hitting migraine meds. I told him that I didn't fancy the backlash headaches after the meds wore off. He was impressed that I was so informed about my illness and how to treat it without going overboard.
I've been watching the lavish pharmaceutical companies and medical insurers control the govt in this country for the last 10 years, and to say that I'm disgusted is such an understatement.
My best friend has an autistic 15 yo son, and I've watched her go through hell since the day he was diagnosed at age three. Single mother, bad situation. However, he is the glowing light in her life. :-)
I wonder if the 'shove it under the rug' lobbyists and politicians have thought about the affects that so many autistic adults who live to a ripe old age will have on the social security and welfare systems in years to come? Like so many of the pollies and and medical giants in this country, they think as long as it doesn't affect them, they don't care.
Oh, God, Our J.: how could they do that to your mum? And she didn't know that she was being experimented on? There's grounds for a lawsuit right there - for putting her in harms way. Urk.
Angry now...stomp, stomp, stomp. Sigh.
Many hugs to you both, and all of you. And may the sun shine long and bright in Lila's world, Cornelia.
Marianne
I want to thank you all very much for reading this. It's a long piece, and there's a lot going on in it. You guys are smart and hip--I know that--but it's a lot to ask of one's friends to wade through a pile of information like this.
It's not something I can explain in fewer words, or less time, though, and I wanted to just put it all together in one place so I can offer it up the next time someone says to me, "you don't believe in that vaccine crap, do you?"
As I said at the end of the post, I don't know what causes autism. Hell, I would've been an English major if my college even HAD majors, you know?
But when there's enough weird stuff piling up to make even an English major take notice and wonder if there's any sort of connection, maybe it's time for the chemistry and biology and geneticist types to do a little checking.
Again, thank you all for taking the time to read this. It means a great deal to me.
Cornelia: Thanks for posting your vaccine info. That meeting of so-called responsible "experts" at that conference center... Grrrrr.
Sad to say with all our tax money spent on the CDC and the US Dept of Health and Human Services as well as WHO at the UN, we must do self-education and self-protection.
I happened to catch a TV show last night about the decades and decades it took for women to get the vote in the US. I hope the prevention and cure for autism won't take as long. Maybe it will take a US President having his or her own child developing autistim in the White House for that to happen.
I like the reverse study you mention on the Amish. Very good insight.
Jim
Cornelia, I'm blown away (but not by his smoke....) This is the world I live in, of course, having three girls with autism. Your blog entry was like a very good book, "read read read, page down, read read read, page down..."
Wow. People are opening their eyes to autism epidemic. It's not a genetic "blip" - it's something that could happen to your child, grandchild, niece, nephew - at a higher rate than all other childhood "diseases COMBINED."
This was powerful.
Cornelia,
"I can't speak for anyone else, but I'm pretty fucking sick of being told how stupid I am."
You can speak for me, and I am sure that many parents echo your very candid, valid words. Thank you!
healingjack
Amazing, brilliant, post.
BRILLIANT!
Thank you.
Thank you so much, you guys--again for reading this, and for the solidarity. This is such a complex issue to describe to friends and family. There's just so damn much information and nuance to it all, and it ends up sounding like an implausible thriller novel, plus when ever I talk about it at length, I keep thinking someone's going to slap a tinfoil hat on me.
As I said to Kim earlier, if I think about it all too much it makes me so angry I want to go to the CDC parking lot and start smashing in windshields with a baseball bat.
It's a good thing to be able to get it all out of my system in an, I dearly hope, constructive way.
Thank you.
Jesus.
I have four kids, all who have been going through their various vaccines and boosters these past 15 years. None of my kids show any signs of neurological issues, but still... jesus.
I suddenly feel very cold.
.
.
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B
Brett, as you no doubt know I've got fraternal twin girls. They had the same shots at the same ages--same lots, same doctors, etc.
One was the "dominant twin" the first year--hit all her milestones first, etc. Between 12 and 13 months she stopped looking up when we said her name, stopped most of her babbling (they'd both been using words by that point), stopped looking us in the eye, stopped playing with her sister. By the time she was two and a half, she had completely lost her language. She's never spoken again, except for repeating a phrase someone else said twice, over the last 12 years.
She can't tie her shoes, can't get herself dressed (will put socks on her feet but often backwards, so the heel's at the front), can't quite brush her own hair or teeth. We're very lucky that she finally learned to use the toilet by herself at age ten. Some kids never make that step completely.
Tiny milestones: she knows how to put on her seatbelt in the car, she understands the phrase "shut the door" and occasionally "get your shoes," she can match photographs of leaves and objects in her classroom to similar photographs. She knows the signs for "food" and "more" and "all done." They've been working on the same ten signs with her since before she was three. They're teaching her the sign for "break" so she'll hopefully use that instead of biting herself or the teacher when she's frustrated.
She's now three inches taller than I am--like a five-foot-eight one year old, whom I love very dearly. She would have no idea of the danger of walking in front of an oncoming truck.
Her sister just got high honors at one of the most competitive high schools in the country--she's a year younger than all of her classmates.
I try really, really hard not to imagine what life would have been like if they were BOTH okay, because if I think about that, it makes me break down and sob every damn time.
When I read that description of Hannah Poling, I had to leave the computer for about an hour, because I know just what that was like for her parents--to watch a child recede from you when there's not a DAMN thing anyone can tell you about it, and certainly not a damn thing they can do to stop it.
To find out over the years that there might have been a way to stop it, that the government might have been able to act in time to save several hundred thousand children from this horror (and probably millions more around the world), is goddamn heartbreaking
I fucking hate this, and I don't want it to happen to another child--another family--ever, ever again.
frightening, sad, disturbing, frustrating...........!
i know what it´s like to have two girls who are so diffrent from each other. one a winner all the way and the other one always limping behind. and then you find out that there is much more that could have been done......
i´m right beside you with that baseball bat.
sybille
Thanks for the post, Cornelia, from the author-parent of another vaccine damaged child:
http://www.ageofautism.com/2008/03/and-the-word-of.html
Wow - that was an amazing post, or as Marianne said, an essay. It was so incredibly well done and if you had written it any other way I would never have made it to the bottom. I would have simply blown it off and moved on. Thanks for crafting it is such a way that a I was able to actually understand all of the information presented. It's amazing how easily we can all be convinced that "Up is Down" when there is enough money involved.
I'm speechless, this is an amazing piece of work. I've never read anything that echoes exactly what I want to scream from the rooftops on a daily basis, but here it is in black and white. You wrote it. I could be you, you could be me. If you ever were to head anywhere with that baseball bat I'd want to be right beside you. The enormity of what has happened to our children is often too much to bear. Thank you for putting it to words. I will be forwarding your words far and wide. Thank you.
What an absolutely amazing post! Thank you for compiling this information in a manner in which people can easily read this. These are the same points I have been making for a long time, and like you, am sick of people looking at me like I'm nuts.
I'll be passing this on to everyone I know.
Oliver Reed was a British actor who hit his stride in the 1960's and 1970's. A partier who made Richard Burton look like an amateur, Reed once said in an interview:
"Don't smoke. Don't drink. Don't have sex. Die anyway."
Words to live by....
Thank you, thank you, thank you (one for each of my 3 boys with autism).
I have 4 boys with autism, two sets of twins. We did not consent to vacciantions for the second set. We told the hospital that we wanted to wait on the Hep B because I was a stay at home mom and not an IV drug user. I did not have Hep B nor did anyone in the family.
Three years later we found out that they boys were vaccinated anyway. We noticed signs of autism in one of the younger twins when he was just a few weeks old. Today he is 5 and non-verbal. His twin brother was large by almost a pound and a half (They were 6 pounds 2 ounces and 7 pounds 9 ounces born at term). He'll be an Aspie. We got a letter from the State telling us we were bad bacause our vaccinations were not up to date. That's how we learned that they had been vaccinated without our consent at birth. By then, the boys were almost 4.
My daughter is autism free. No one in the extended family had autism. No strange sibs, no quirky uncles, no really smart engineers. Just boring NT people.
Your photo essay is brilliant, and your description of your daughter's situation mirrors our own. People outside the world of autism who still haven't made up their minds about the thimerosal issue (yet still choose to get mercury-free flu vaccine for themselves, once they are made aware of the issue, just in case) owe a cosmic debt to those, like you, who have prevented other tragedies from occurring, maybe to even their own families.
Cornelia,
This is one of the best pieces of writing I've read in a long time. It's truly a masterpiece. I know the story all too well but you put it together in a way that was so compelling and impossible to put down. I too am a parent of a child with regressive autism who previously had met every developmental milestone. That is until he got seven vaccines in one day at 15-months of age. He was never the same afterwards. I'm sending the link to your blog to everyone I know because maybe they'll really start to get the bigger picture.
Thank you, thank you for taking the time to do this.
When I was in college I did some research on methyl mercury and had to do all my work in a fume hood with multiple layers of gloves and supervision. Mercury compounds are just plain nasty, nasty things. The research I did to support my work really opened my eyes, too. And that was all back in 1990. What a wonderful, tragic, enlightening piece of writing, my coffee went cold because I was so engrossed. My heart goes out to you.
"I can't speak for anyone else, but I'm pretty fucking sick of being told how stupid I am."
I'm also fucking sick of seeing some of the most caring, intelligent, compassionate and common sense parents being called "free riders" and "parasites" in just about every one of those goddamn apologistic pieces of crap that I read in the papers these days, just because they're standing up for the principles of informed consent and "first do no harm".
I'm equally fucking sick of the repeated use of these ugly terms to get the rest of the herd all worked up into a frenzy - ready to stampede over anyone who speaks out about safety. Funny - where the hell are the rallying cries, and who really gets the free ride, when your kid catches the bullet? Are the ones who yell the loudest about the duty to society ever seen lining up outside the door of an injured child to help with medical costs, respite care, special education, whatever...?
And I'm totally fucking sick of watching slime like "brain-damage-is-ok-as-long-as-we-don't-call-it-autism" Gerberding rubbing salt in the wounds of injured children.
My conflicting interest - I'm an autism dad - and like you, I do not know absolutely that any particular shot(s) "caused" my son's autism - alone or in combination with other factors - but we watched the light disappear from his eyes a bit more after every shot, after every subsequent trip to emerg (every time), and after all the lab tests showing heavy metals, demyelination, neuroinflammation, etc. people still look at us like we have 3 heads when we try to talk about this.
Bill O'Rielly, who used to say (paraphrasing here) "support the war in Iraq or shut the hell up" once threw the son of a 9/11 victim out of his studio for trying to debate him on the merits of the Iraq war. Apparently you're also stupid if you feel that 4000 of your brothers and sisters (so far) have died for a lie.
So you're not alone. The truth (whatever that turns out to be) will swell up from the ground level, where thousands of parents with very sick children have pretty much had it with the lies and spin coming from the people in charge.
Clap...clap...clap
I don't think I could imagine it being said better - thank you.
conflict of interest - autism mom
Excellent article - I'm spreading it far and wide. I think you'd like this site as well:
http://insidevaccines.com/wordpress
Oops, the link got cut off insidevaccines.com/wordpress